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  1. #101
    boilermakermom is offline Bargain Alerts forum moderator
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    Thoughts and prayers headed your way!!!!!!!!

  2. #102
    maestramommy's Avatar
    maestramommy is offline Pink Diamond level (15,000+ posts)
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    oh my goodness, brave girl! Prayers for smooth surgery!
    Melinda
    Mommy to
    The Gift 10/01/05
    Elfgirl 5/25/07
    Sparky 6/27/09

    "Sunset to Twilight, Our Family's Journey with Alzheimer's." http://maestramommi.blogspot.com/




  3. #103
    almostmom is offline Sapphire level (2000+ posts)
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    THinking of you all, with healing and successful surgery vibes going your way.
    Liz

    DS 11/03
    DD 12/05

  4. #104
    Philly Mom is offline Diamond level (5000+ posts)
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    What a brave girl. Thinking of your family.

  5. #105
    oneplustwo is offline Sapphire level (2000+ posts)
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    Just seeing this thread now. Heaping tons of P&PT for your DD and your family over the next few weeks. You guys have been through so much!
    “The difference between perseverance and obstinacy is that one often comes from a strong will,
    and the other from a strong won’t.” Henry Ward Beecher

    Worry is like a rocking chair ~ it keeps you busy but it doesn't get you anywhere.

    for Sandy Hook Elementary School

  6. #106
    missym's Avatar
    missym is offline Bargain Alerts forum moderator
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    Sending continued P&PTs for healing and a successful surgery in a few weeks.
    Missy
    Mom to DD1 '03 and DD2 '05

  7. #107
    Join Date
    Jun 2009
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    Thank you all for your thoughts and kind words. It means so much to have a support network all over the globe!

    Last night was pretty rough with nausea and vomiting, which was terrifying with her mouth wired shut and a new tracheostomy. Our nighttime nurse was good when she was in the room, but she spent far too much time on her iPhone instead of watching DD. I couldn't sleep because I was scared she would start to vomit again and the nurse would miss it. My mom was able to sleep for about five hours and then take over for me so I could get a few hours. We are all feeling much better and less snappy this morning.

    Abby is pleased with her new profile and the fact that her lips can touch, which they haven't been able to do in many years. She is obviously frustrated but is taking it like a champ. She was able to have some sprite earlier, but she coughed a bit afterwards. All liquids are on hold pending an eval from an SLP. She is communicating through her iPod right now while we wait for an iPad with a Text-to-speak app to arrive tomorrow from a relative (an SLP in another part of the state). She is being weaned off of IV pain meds and will try some oral (or maybe ng tube?) later.

    Again, thanks for your thought and prayers. It means so much.

  8. #108
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    Great update! Hoping the recovery continues to go well and that you manage to get some sleep tonight!

  9. #109
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    Read your updates and will continue to send positive thoughts as she recovers and awaits her next surgery. (((Hugs)))
    DD1 - 1996
    DD2 - 1999
    DD3 - 2005

    Surfaces are for working, not for storing. - Peter Walsh

  10. #110
    MamaMolly is offline Red Diamond level (10,000+ posts)
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    God bless her!!!!!!! Huge hugs going forward.
    Molly
    Lula '06 outgrew her allergy to milk & eggs, still allergic to peanuts and cats
    Dolly '10

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