2 month old DS dx with hydrocephalus -- help -- Update

[hillview]

UPDATE
Saw a second neurosurgeon today and they want to wait til the MRI before they do the surgery. We are going with him as he seemed more been there, done that then the other doctor was. We should have an MRI done next week. Please keep us in your thoughts.
Thanks!
/hillary
==
I am beside myself. DS has been dx with hydrocephalus -- enlarged ventricles in his brain ... we are waiting for an MRI to see what is causing the issue -- the ct scan showed a white mass which we hope is not a tumor. Anyone btdt? DS is scheduled for surgery for a shunt in 2 weeks. Please keep us in your prayers and thoughts.
TIA
/hillary

[megs4413]

praying for you and DS...

my DD had this in utero, but the blockage resolved on its own at birth...so i know not all blockages are cancerous. i hope you get good news with the MRI. have they done a spinal tap?

[JustMe]

I am sorry to hear you are going through this. No btdt, but lots of hugs and positive thoughts.


Robyn

[Fairy]

Hillary, I'm thinking of you and DS. Hugs.

[Piglet]

No BTDT, but I want to send some huge cyber-hugs your way. You and your DS are in my thoughts.

Marina

Mommy to
DS1 A 07/14/01
DS2 K 03/10/05
DD1 A 05/08/07

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[Marisa6826]

Hillary-

I do have experience with this, but it was in-utero with Sophie's twin brother. The hydrocephaly was caused by aqueductal stenosis in both hemispheres of his brain. Thankfully, it sounds as if it is not as severe in your DS's case.

Many, many hugs and prayers. I have walked in your shoes.

-m

[egoldber]

I am so sorry! Wishing all the best for his surgery!!

[scoop22]

thinking of you and your family!!! we will keep you all in our prayers.

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[thomma]

Hillary-
Thinking of you and your little one.

Kim
ds&dd 5/03

[elliput]

Many hugs and good wishes for your sweet DS and yourself too!

[chlobo]

Keeping you in my thoughts & prayers.

[janeybwild]

Hillary, prayers and thoughts for you and your DS. Hang in there mama.

[Jenn98]

All my prayers are for you, your baby and your family. Please keep us posted. HUGS!

[ChunkyNicksChunkyMom]

Hillary I just want to send you a huge hug. There was a time before Kate was born that the doctors thought she may have hydrocephalus and I was frantic with worry. The more reading I did about it, it seems that many, many cases are completely treatable and controlable with the shunt. I pray this is this case for you! Please keep us posted.
Susan

#1 Nick 11-18-04
#2 Kate 04-26-06

[pb&j]

No BTDT, but sending hugs and good thoughts your way.


-Ry,
mom to Max, age 1.5
and my girl in heaven

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[gatorsmom]

No BTDT but many prayers and positive thoughts for your family.

Lisa
mom to Gator 03
mom to Cha Cha 05
and surprise! twins 11/07

[cleo27]

I am sending hugs and positive thoughts your way. I hope that he is okay.

Hugs,

[Katia]

This is similar to our experience, except that it was for a few months after DD was born that her pediatrician was concerned. I was also beside myself with worry, but like Susan said, there are so many cases where the hydrocephalus is completely treatable. It's amazing what they can do.

You and your baby boy will be in my thoughts! I hope he is feeling well physically (did he have symptoms that led the doctors to suspect hydrocephalus?) and that you are OK, too. Huge hugs to both of you.

Katia
DS 2003 and DD 2006

[kozachka]

Huge (((hugs))). And lots of positive thoughts. Hope surgery will fix whatever is causing it.

[Ceepa]

Hillary,

The procedures now are so amazing and effective. Even the shunt placement itself is supposed to be a relatively uncomplicated procedure.

This Web site may help answer some of your questions:
www.hydroassoc.org

Your family will be in my thoughts and prayers. Please keep us posted.

-Ceepa

[SnuggleBuggles]

My thoughts are with you. I hope that everything is ok. Please keep us posted. Big hug to your little guy.

Beth

[new_mommy25]

Hugs and prayers for your DS. I'll be thinking of you.

[HannaAddict]

I'm so sorry to hear this. My thoughts are with you and your little boy. I hope that the news is good and that the shunt will resolve things. Please take care.

Kimberly

[Fairy]

Hugs, Hillary.

[Marisa6826]

Definitely trust your gut on which doctor to go with and, yes, please keep us posted.

hugs and prayers

-m

[Katia]

I'm glad you felt good about the meeting with the second neurosurgeon. Please keep us posted and I'll be sending lots of positive wishes. I hope the MRI goes well. Hugs!

Katia
DS 2003 and DD 2006

[billysmommy]

We've been thinking of you all ~ sending (((hugs)))

Please keep us updated

[missym]

Hillary, I'm sorry your facing such a scary situation with your son. I'm praying for your family.

Missy, mom to Gwen '03 and Rebecca '05

[brittone2]

THinking of you and your family. Shunts can really work well for a lot of kids. Obviously the key is finding the cause for now and going from there.

You and your little one will absolutely will be in our thoughts.

[o_mom]

Big Hugs. We will be thinking of your little guy and hoping for the best.