urquie
11-20-2009, 03:14 AM
it is really easy to vote, just go to the site (http://www.astana-cyclingteam.com/special_features/Charityprizes.html), scroll down to the bottom, select "24 hours for hank" and then click on vote. our family friends would really appreciate your vote!
This year “24 Hours for Hank” has been chosen by Team Astana (Lance Armstrong's cycling team at the Tour de France) to receive support for our upcoming 24 Hours Ski Schweitzer ski event. For Team Astana to determine their financial support level, we need votes. Please go to: http://tinyurl.com/ye75sqr (http://tinyurl.com/ye75sqr)and cast your vote for “24 Hours for Hank.” Also, if you know of others whom you believe will help, please forward the link.
http://www.astana-cyclingteam.com/special_features/Charityprizes.html
24 HOURS FOR HANK – submitted by Tricia Sturgia
We raise awareness and money for medical research for a rare, genetic disease called Cystinosis. This disease eventually destroys all organs in the body, starting with the Kidneys. Children must take medication every six hours. There is no government funding since this disease is so rare. All of our fundraisers are 24 Hour sporting events. We held a 24 Hour bike race last summer 2008 and a 24 Hour ski race last winter 2009. We are just getting ready to host our 2nd annual 24 Hour ski race on January 22 & 23, 2010.
My husband's best friend started this Foundation for our 3 yr old Hank, right after he was diagnosed at 16 months old, who suffers from this rare disease Cystinosis. We are 100% committed to finding a cure for Cystinosis so no child or family has to live with this terrible incurable disease.
It is our passion and our mission to do everything and anything we can to make chilren's lives better who face this terrible disease. These kids have to take 5 or more medications every six hours. These kids are truly heroes. We will make a difference by finding better treatments and someday a cure!
If we receive an item from Team Astana it would be used in our upcoming fundraiser, the 2nd annual"24 Hours of Schweitzer." We have a dinner and auction (live and silent) after the ski event and we would have the item up for bid in our live auction. Many of our followers are both bikers and skiers.
Website: www.24hoursforhank.org (http://www.24hoursforhank.org/)
Video: http://www.youtube.com/results?search_query=cystinosis+natalies+wish&search_type=&aq=f (http://www.youtube.com/results?search_query=cystinosis+natalies+wish&search_type=&aq=f)
This year “24 Hours for Hank” has been chosen by Team Astana (Lance Armstrong's cycling team at the Tour de France) to receive support for our upcoming 24 Hours Ski Schweitzer ski event. For Team Astana to determine their financial support level, we need votes. Please go to: http://tinyurl.com/ye75sqr (http://tinyurl.com/ye75sqr)and cast your vote for “24 Hours for Hank.” Also, if you know of others whom you believe will help, please forward the link.
http://www.astana-cyclingteam.com/special_features/Charityprizes.html
24 HOURS FOR HANK – submitted by Tricia Sturgia
We raise awareness and money for medical research for a rare, genetic disease called Cystinosis. This disease eventually destroys all organs in the body, starting with the Kidneys. Children must take medication every six hours. There is no government funding since this disease is so rare. All of our fundraisers are 24 Hour sporting events. We held a 24 Hour bike race last summer 2008 and a 24 Hour ski race last winter 2009. We are just getting ready to host our 2nd annual 24 Hour ski race on January 22 & 23, 2010.
My husband's best friend started this Foundation for our 3 yr old Hank, right after he was diagnosed at 16 months old, who suffers from this rare disease Cystinosis. We are 100% committed to finding a cure for Cystinosis so no child or family has to live with this terrible incurable disease.
It is our passion and our mission to do everything and anything we can to make chilren's lives better who face this terrible disease. These kids have to take 5 or more medications every six hours. These kids are truly heroes. We will make a difference by finding better treatments and someday a cure!
If we receive an item from Team Astana it would be used in our upcoming fundraiser, the 2nd annual"24 Hours of Schweitzer." We have a dinner and auction (live and silent) after the ski event and we would have the item up for bid in our live auction. Many of our followers are both bikers and skiers.
Website: www.24hoursforhank.org (http://www.24hoursforhank.org/)
Video: http://www.youtube.com/results?search_query=cystinosis+natalies+wish&search_type=&aq=f (http://www.youtube.com/results?search_query=cystinosis+natalies+wish&search_type=&aq=f)