P&PT Please - DS1 has Kawasaki Syndrome

[alexsmommy]

I don't have time this morning for all the the details, but part of the really sucky week I mentioned in another thread was that while I was hospitalized for pre-term labor, DS1 was horribly ill. He was finally hospitalized and diagnosed with Kawasaki on Saturday. He's responded well to treatment, but today is his echocardiogram to look for heart damage. If you can spare some P&PT that there is no cardiac involvement, my family would greatly appreciate it. He has an echocardiogram scheduled this morning.
Physician is optimistic, he was diagnosed about as quickly as possible, but he still had just about every physical sign (except edema of hands and feet and peeling - but dr. thinks that would have come next) and every blood/urine marker (signs of inflammation, high WBC count, enlarged gallbladder and liver...). We are hoping that even though he had everything else, because threatment was began on day 5.5 of the fever that we avoided heart damage.
Two hospitals, two pateints in one week. Who'd have thought.
You can all imagine how my "bedrest" has looked this week.

[Melaine]

Alaina, I will be praying for you today. My sister had KS when she was one and it was a very scary experience. However, the doctors were unable to diagnose her for quite sometime and it definitely sounds like your medical team diagnosed your son much earlier. (She had peeling of hands/feet along with many other symptoms). She just turned 18 yesterday and although she has had some health complications from her illness, thankfully no life-threatening heart issues. Prayers for your DS!!!

[sidmand]

Oh, poor DS and poor mommy. P&PT coming your way. It seems to have been a really tough week for a lot of people. Take care.

[BabyMine]

I'm praying that the echo comes out normal. It's wonderful that he is responding well to treatment. I'm sending lots of P&PTs your way.

[amandabea]

sending you P&PT for good results

[elephantmeg]

0h no, P+PT comming your way. I hope the echo looks fabulous and that you can rest

[MontrealMum]

Sending you lots of P&PT that your DS is OK :grouphug: and any complications are minor.

[JTsMom]

Lots of P&PT coming your way. I'm so sorry your family is going through this. :hug:

[caleymama]

Oh my, lots of P&PT headed your way! What a week... I hope your DS is feeling and doing better ASAP and that you are able to rest and keep cooking #3.

[Corie]

Sending positive thoughts for your son!!

I hope everything goes well today.

[SnuggleBuggles]

Oh my! Lots of positive thoughts headed your way!!!!

Beth

[ast96]

Good luck and I hope your scans all come out perfectly. My little nephew had KS when he was 15 months old. He was diagnosed after two weeks of fever, and he has never shown any sign of heart damage. He's 5.75 now and he has had all clear scans. I hope you are as lucky.

[carolinamama]

Oh, my goodness. You have had your fair share of unwelcome excitement this week. Hope you DS is feeling better soon and his echo comes back normal. Lots of prayers and positive thoughts for both of you guys.

[cuca_]

Sending P & PT your way. I hope the echo shows no damage.

[g-mama]

Oh Alaina. I am so sorry you and your family are struggling with two different health issues right now. I had a friend whose dd had Kawasaki syndrome and I know how frightened she was. It all turned out okay. I will be praying for your ds that his heart is healthy and that he will be fine, too. And for you and your baby. Wow. What a week it it has been around here. Hugs to you, mama. You are in my thoughts.

[MamaMolly]

P and PT on the way for you and the family. Please know your son is in excellent hands and is receiving the care he needs. Plus he has the BBB Mojo working for him, so please please try to get a bit of rest. I know it isn't easy. :kisscheek:

[jgenie]

I'm so sorry. P & PT headed your way. :hug:

[Melarina]

praying for your family!

[ThreeofUs]

Hope all goes well! P&PT coming for your DS, for you, and for your family.

Hope you all feel better soon.

[bubbaray]

P&PT headed your way.

Boy, this board has had a run of bad luck lately. Here's to 2010 being a fresh, healthy start for all of us!

[DrSally]

Oh No! I'm glad he was diagnosed so quickly and hope the treatment results in a full resolution with no heart damage. What a stressful time! My thoughts are with you and your family.

[trales]

We will add you to our prayers. I hope for a very speedy and problem free recovery.

[jenfromnj]

sending you lots of P&PT, and hoping that things will be less eventful for you soon!

[DebbieJ]

Oh my Alaina! Praying for you guys!

[fivi2]

Sending positive thoughts your way.

[sste]

Oh my goodness, this is not a good week for bb healthwise. Lots of positive, healing thoughts for your son. That is very scary stuff but it sounds like it was caught early.

[lmintzer]

Thinking of you today, Alaina. Hope that the results of DS's echo are good and that there is no cardiac involvement. :hug:

[Mamma2004]

Alaina, sending lots of prayers to you and your family!!!!

Please take care of yourself and know that your son has great wishes coming from this community!

[Moneypenny]

My goodness -what a week! Sending lots of positive, healthy thoughts to your whole family!

[Melbel]

You and you DS1 are in my thoughts and prayers. Please keep us updated!

[crl]

Prayers for you and your family.

Catherine

[kdeunc]

I will keep you and your son in my thoughts and prayers.

[wellyes]

I'm so sorry. It's wonderful that he's diagnosed and that it's so treatable. Best of luck to you.

[ChunkyNicksChunkyMom]

A, I am praying for your family, my friend!

[egoldber]

Oh goodness! Wishing you all the best!!!

[Melanie]

I'm sorry. I hope the test results come clear for his heart.

[mousemom]

Lots of prayers for you and your family! Hope the results of the echocardiogram are good.

[boolady]

Keeping you in my thoughts and hoping for positive results.

[catpagmo]

Poor little one. Sending lots of P&PT your way.

[mama2g03]

Lots of P & PT to your family. So glad he was diagnosed early. Good luck with his test results.

[arivecchi]

Good luck with the test today and let me know if you need help. I'm not that far away. :hug5:

[deborah_r]

Thinking of you, Alaina, and hoping for good test results for your (big) little guy!

[HIU8]

Sending P&PT your way. Hope everything goes well today.

[alien_host]

Positive thoughts for you and your family.

[bnme]

Hoping the test goes well. Sending p&pt.:hug:

[wimama]

Prayers going out to your family. Hope the test clears him and he is feeling better fast!

[wendmatt]

How awful for you. Praying that your DS recovers fully as soon as possible.

[elektra]

P & PT for both you and your DS.

[TwinFoxes]

P&PT to you and DS. I have read how difficult it is to diagnose Kawasaki's. I am glad they were able to figure it out early.

[Dcclerk]

I hope that it turns out that this is just a really stressful blip in your month, and nothing more. I'm definitely praying for you and A!

[new_mommy25]

My prayers and thoughts are with Alex and your family.

[Globetrotter]

I'm glad they diagnosed it early and hope that will make all the difference. Gosh, I'm sorry you're going through so much! :grouphug:

[Momof3Labs]

Oh, Alaina, you are having a tough run. I'm impressed that you are keeping that babe inside of you through all this (and you MUST - you don't want to add trips to the NICU to all of this).

My co-worker's daughter was diagnosed with Kawasaki a few months ago; she is doing well overall. LMK if you would like to speak to him for any info/support.

[dotgirl]

Lots of P&PT for you! My oldest younger brother was diagnosed with KS when he was a few months old - spent several months in the hospital, but almost 30 years later he's had no complications at all. *hugs* Good luck to you and your little guy!

[sunshine873]

Oh I have shivers over the stress you have been dealing with! I'm so sorry! Definitely P & PT coming your way for a positive end to 2009 and a healthy 2010!

[shawnandangel]

Saying prayers for a speedy recovery for your DC!

[missym]

Lots of P&PT coming your way! I hope the tests come back with reassuring results, and that everything starts to become less stressful for all of you soon. :hug:

[KathyN115]

So sorry for you and your DS. Hope he improves soon!

[sste]

Alexsmommy, are you in the chicago area? I think Childrens Memorial has a big-name kawasaki research doctor (no idea of how she is a clinician but I assume good). An acquaintance of ours worked with her and did all kawasaki research about five years back.

Keep us posted!

[alexsmommy]

The cardiac news is 95% good. No coronary artery aneurysms or myocardidtis, but, in layman's terms, the squeezing/pressure on the left side of his heart is a little low. This is fairly common in the acute and subacute phase and the cardiologist feels there is a very good chance it will have resolved itself by his follow up. His heart looks good enough that the follow up echocardiogram is in one month instead of two weeks. He's to take it easy the next two weeks and then no restriction on activity. That works out perfectly because I don't see him being too keen on missing two weeks of gym, recess or basketball, none of which he has until school resumes.

Thanks for all the well wishes and prayers. We won't breathe a total sigh of relief until the follow up echocardiogram but for now, things look good.

[ZeeBaby]

Hoping your son gets better soon.

[wencit]

That's good news, Alaina! More P&PT for Alex headed his way!

[daisyd]

Alaina, hang in there. P&PT and hugs.

[octmom]

P&PT coming your way, Alaina.

[jk3]

Oh no, Alaina. I'm so sorry. I hope Alex is on the mend and that he is back to himself as soon as possible. I'm also sorry that you are unable to rest. I'm sure this is an impossible time. Thinking of you and your family.

[Melaine]

That does sound like good news. Hopefully the follow up will be 100% clear. I hope you and your family are able to take it easy and enjoy the holidays as much as you can!

[vludmilla]

PT headed your way. I hope he recovers quickly.

[arivecchi]

Glad you got some positive news! Hope you all feel better soon.

[mamicka]

:hug::hug::hug:

[MamaKath]

(((Alaina))) Wow what a week!!! I am hoping Alex is one the mend quickly and that you are able to rest as well. Lots of P&PT for your family!!!

[KpbS]

:grouphug: So glad they caught it early. P+PT

[erosenst]

Just saw this. Wanted to add that a friend's son had it at 12 yrs old. They diagnosed it VERY late (partially because he was older, and partially because he didn't have some of the classic symptoms like peeling hands and feet)...but 2.5 years later you would NEVER know he had it, and he's had no residual issues. Am hoping the same will be your case.

[eliasmom]

Sending P&PT for your whole family.

[firsttimemama]

prayers and positive thoughts for you & for DS

[alexsmommy]

Thanks so much everyone.
The good - no fevers thus far, thank goodness. If he developed another fever he'd have to do another round of IVIG.
The bad - he is weak, eyes are still somewhat red, he is irritable like nothing I have ever seen. This is an earmark of Kawasaki, but reading it I expected the typical sick irritable. No, this is a whole new world. He cries at everything. He is miserable. His taste buds were damaged so he can't taste well so he does not eat beyond satiation, and he'd lost five pounds during the five days of fever. He runs cold due to the low blood pressure so he's constantly complaining about that. He HATES his baby aspirin, and he has to take 28 a day. Yes, 28. Worst of all, his hands and feet are very, very itchy - which means they'll probably peel soon, but for now he is utterly miserable. We all feel just horrible for him.
I'm still contracting - today it was every 3-8 minutes on the monitors. We're all crossing our fingers I can make it at least two more weeks, but let's put it this way, on my agenda when my friend gets here to help me tonight is having her wash boy/girl coming home outfits and me making a packing list. Still not dialating though so I'm trying to be optimistic.
The good again, we are blessed with wonderful friends and family. My parents took the boys today so I could work (midwives and OB correctly assume I'll rest more sitting in my office doing therapy than at home) and my good friend who lives 45 minutes away saw my distress email to the local gals for help for tomorrow and she is coming tonight after work. Again, thanks for all the prayers and well wishes, I do believe in the power of collective positive energy.

[elephantmeg]

I'm glad things look good for now. Hope you're able to keep the new baby inside a few more weeks!