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View Full Version : New Update:Update on DD's situation-burns-mojo please!!



elephantmeg
12-22-2009, 10:38 PM
Update: we ended up going to OR around 10 this morning (on 5 min warning) DH was home-about 45 min away when they called for us so I had to take her by myself. She finally made it out of surgery around 12:45 (!) they ended up doing 4 grafts actually and taking 3 peices of skin from her rt thigh. They had trouble ventilating her during OR and ended up getting a ton of green gunk when they extubated her at the end. Her O2 sats are OK on blow by O2 but if it moves away she goes down fast-so we are back in the PICU. Her chest x ray was normal but they are going to put her on antibiotics anyways. Now we just have to keep her awake enough to cough/breathe better but sleepy enough not to try to roll, crawl or otherwise displace the grafts. Yikes. Well, she's crying so got to go. THanks everyone for your beautiful messages.




Well, DD is scheduled for surgery tomorrow for skin grafts in at least 2 places (chest and lt upper arm) maybe 3 (rt upper arm). They'll take her to OR regardless but if they look better they'll hold off on the actual grafting and just do the cleaning under sedation there (which they have been doing every day but as floor sedation not OR). If they do graft, she'll be here for at least a week more, maybe 2. If they hold off tomorrow then they may well do it later in which case we would be here even longer. I don't know what to hope-to just have it over and done with or that there is a miracle and she doesn't have to have it at all. If she does have to have it then I want it over, if she doesn't need it then I hope it is so clear tomorrow. Oh, I am so heartsick. They'll have to take skin from her thigh which they say is the most painful part and will probably scar. They say they could revise the scars in a few years and pull them together so they are just a long line. Surgery is scheduled for 2:15 tomorrow. So prayers, mojo and PT appreciated.

hillview
12-22-2009, 10:43 PM
Oh MORE BBB MOJO coming your way!! SUPER hugs!!
/hillary

bubbaray
12-22-2009, 10:45 PM
P&PT and all the mojo I got coming your way.

Hugs to all of you!

lilycat88
12-22-2009, 10:45 PM
Strength and courage to all of you.

infomama
12-22-2009, 10:46 PM
Oh my...I am so sorry. I will keep you all (including the surgeons) in my prayers tonight and tomorrow. I hope she is resting comfortably.

g-mama
12-22-2009, 10:47 PM
You will continue to be in my prayers, mama. I hope that the doctors can make the right decision tomorrow and will pray for the best outcome for your dd. It must be so hard to be in the hospital with the prospect of being there for so much longer. I feel for you. Be strong and know that you can handle this. We are all pulling for you. :grouphug:

mousemom
12-22-2009, 10:48 PM
I'll be thinking about you guys tomorrow. You sound like you are doing an amazing job of being strong for your little girl!

o_mom
12-22-2009, 10:49 PM
Many prayers coming your way. I hope that everything goes well tomorrow, whatever they decide.

alexsmommy
12-22-2009, 10:50 PM
Many, many prayers for your little one for a speedy recovery.

MamaMolly
12-22-2009, 10:51 PM
Oh sweetheart. This is the hardest part. The recovery is on the way, starting (really) tomorrow. My heart goes out to you. P and PT on the way, tomorrow and on.

sunshine873
12-22-2009, 10:52 PM
Prayers, prayers and more prayers for you, DD and the Dr's. May she get through this as quickly as possible with the best possible outcome.

SnuggleBuggles
12-22-2009, 10:53 PM
More positive thoughts coming your way. I am so sorry you are all going through this.

Beth

tylersmama
12-22-2009, 10:56 PM
:hug: and lots of good thoughts!

wellyes
12-22-2009, 10:56 PM
We're thinking of you in our home too. Good luck to your little girl.

egoldber
12-22-2009, 10:57 PM
Wishing you and your little girl all the best!!!

EllasMum
12-22-2009, 10:57 PM
Big hugs to you and your DD. PT coming your way.

jent
12-22-2009, 10:58 PM
P & PT & mojo coming your way.

StantonHyde
12-22-2009, 10:59 PM
Hugs, prayers, and mojo!!!!

HIU8
12-22-2009, 11:00 PM
Sending prayers your way. I hope it all goes well tomorrow.

happymom
12-22-2009, 11:00 PM
:hug: Wishing you all the best tomorrow.

Snow mom
12-22-2009, 11:06 PM
:hug: Hope there is a good outcome tomorrow. Sending lots of PT.

shawnandangel
12-22-2009, 11:24 PM
Continuing to say prayers for your DD and your family.

JMS
12-22-2009, 11:28 PM
Many prayers to you and your DD tonight. I hope tomorrow brings what it is best for her recovery. Hang in there. BIG HUGS

gobadgers
12-22-2009, 11:31 PM
Stay strong mama. Will be thinking of you and your family, and sending all the mojo I have your way.

almostamom
12-22-2009, 11:31 PM
I'm so very sorry for her and for you. I can't even imagine what you're going through, but know that I am praying for your little girl every day.

Hugs,
Linda

wencit
12-22-2009, 11:32 PM
Oh, Margaret! I can't imagine how you must be feeling right now. Hugs to your and your DD, and we'll be sending her lots of love and support.

billysmommy
12-22-2009, 11:58 PM
We're thinking of your daughter and family. I hope everything goes smoothly tomorrow

graciebellesmomma
12-23-2009, 12:14 AM
I am sitting here in tears for you and your sweet girl.
I just can't imagine. I am sending lots and lots
of prayers that what you want to happen, will.

I'm sending many prayers and positive thoughts for a miracle
for you and your little girl!

I just was telling my husband about what happened
and my 7 yr old daughter overheard, she is sending
a prayer right now.

There are lots of people thinking about you
and your family around the country right now!

I am so sorry.

sste
12-23-2009, 12:18 AM
Lots of positive and healing thoughts!

KrisM
12-23-2009, 12:21 AM
More thoughts and mojo coming your way. I am so sorry you and your family are going through this :(.

sarahsthreads
12-23-2009, 12:21 AM
Lots and lots of prayers and mojo! :hug:

Sarah

GaPeach_in_Ca
12-23-2009, 12:29 AM
Oh my, I am so sorry your daughter and family are going through this. :(

Sending good thoughts to you.

MMEand1
12-23-2009, 01:10 AM
Keeping your family in our thoughts and prayers. Hope the outcome is a positive one (whatever the Docs decide to do)!

mamalia
12-23-2009, 01:16 AM
p&pt for your dd, you, and your family.

BelleoftheBallFlagstaff
12-23-2009, 01:16 AM
A Christmas miracle must be in store for you!!!! Hugs to you, PT coming from Flagstaff, AZ!

Tondi G
12-23-2009, 01:20 AM
Many prayers and positive thoughts coming your way. I hope that everything goes well tomorrow, whatever ends up happening. Fingers crossed that she has healed so much that she doesn't require grafting. HUGS

goldenpig
12-23-2009, 01:31 AM
So sorry you and your daughter are going through this right now. I hope everything goes well tomorrow. Lots of positive healing thoughts headed your way!

elephantmeg
12-23-2009, 01:37 AM
I'm crying just reading all these comments. Thanks to each and every one of you. I love this community here. We just got moved out of the PICU and are in our very own tiny room with a bathroom! Whoot! It's so nice and quiet here and the nurses say they do this stuff all the time (grafts etc). Mary's temp had been up but she just got another dose of tylenol and seems a little more comfy. off to sleep now!

elektra
12-23-2009, 01:44 AM
Hope you all rest a bit easier tonight. More P & PT for you and your DD. Hoping for minimal pain and scarring for her!

boolady
12-23-2009, 01:44 AM
Lots of P&PT for DD and all of you.

amandabea
12-23-2009, 02:48 AM
:hug: sending little Mary constant prayers and positive thoughts. Hang in there. She is so lucky to have you there for her.

ThreeofUs
12-23-2009, 02:58 AM
I've got my fingers crossed and I'm praying hard for your little girl! May everything go well tomorrow - even if they have to graft - and may her recovery start.

Mojo, P & PT allllll coming your way, with big hugs.

Fairy
12-23-2009, 03:02 AM
I missed the original post, but I can only surmise that something terrible happened. You have my prayers and my PT in vastly large doses. So so very sorry.

:grouphug:

dotgirl
12-23-2009, 03:18 AM
Oh my gosh. Lots of hugs and positive thoughts for you and your little girl.

*hugs*

Melanie
12-23-2009, 03:45 AM
I hope all goes well tomorrow and you get some good news.

dcmom2b3
12-23-2009, 05:55 AM
From one Mary to another: "You are precious, you are strong. You are loved, you will heal." I will be chanting this, offering more traditional prayers and just about anything else I can think of. For your DD and you and your DH too.

MoJo
12-23-2009, 06:10 AM
I'm "Mojo," and I'm praying for Mary, Margaret, & the hospital staff today.

TwinFoxes
12-23-2009, 06:53 AM
You will all be in my prayers. Please take care of yourself as well.

cuca_
12-23-2009, 07:12 AM
Sending P & PT your way. I hope everything goes well today.

maestramommy
12-23-2009, 08:20 AM
OP, I'm so sorry your little girl has to suffer, this must be so hard for you! :hug::hug: I will be praying for her surgery.

Melbel
12-23-2009, 08:52 AM
My heart breaks for you and your family. Sending lots of prayers for a speedy recovery and minimal scarring. :grouphug:

JTsMom
12-23-2009, 09:01 AM
Lots of :grouphug:, and a huge dose of BBB mojo! I hope that today goes as well as possible, whatever that turns out to be. Your family is in my thoughts. One more :hug:.

carolinamama
12-23-2009, 09:02 AM
Oh, Margaret. I am sending prayers your way. I hope your little girl recovers quickly, however it has to happen. Take care of yourself, too.

m448
12-23-2009, 09:10 AM
praying for her today

megv
12-23-2009, 09:19 AM
I hope everything goes well today & your little daughter is on the road to a quick recovery. You are so strong - hang in there mama!

KathyN115
12-23-2009, 09:34 AM
Just read your update - oh, my heart breaks for you and your DD. Prayers that everything goes well, and she has a speedy recovery.

Pennylane
12-23-2009, 09:36 AM
Lots of P & PT coming your way!

Ann

Melarina
12-23-2009, 09:52 AM
My heart goes out to you, your DD, and your whole family. Sending many prayers your way.

BabyMine
12-23-2009, 09:52 AM
I can't imagine the heartache you are feeling right now. I am so sorry. I am praying for a quick recovery.:hug:

arivecchi
12-23-2009, 10:15 AM
P&PT headed your way. We are praying for the best possible outcome for your DD. Hugs mama. :hug:

hollybloom24
12-23-2009, 10:26 AM
I am so sorry. Thank goodness you are in a great hospital and DD is being well cared for. I can't imagine how hard this is on you. P&PT x 1 million coming your way! Stay strong.

janeybwild
12-23-2009, 10:36 AM
I'll be praying for your DD and your family. :hug:

Moneypenny
12-23-2009, 10:41 AM
Sending more good vibes to your sweet little Mary...

jse107
12-23-2009, 10:48 AM
My heart goes out to you. You're such a brave mama--and so calm in your postings! Sending all the PT your way!!! Hugs to you all.

caleymama
12-23-2009, 10:51 AM
Continuing to send P&PT your way Margaret! For you, for Mary, and for the rest of your family. Thank you for keeping us updated.

octmom
12-23-2009, 11:02 AM
Sending more P&PT to your whole family. I hope your DS is doing all right too. I'm sure this is confusing for him. :hug:

WitMom
12-23-2009, 11:05 AM
More prayers coming your way. Hang in there, mama!

JenaW
12-23-2009, 12:58 PM
I came online specifically for an update on your DD. I am so glad that you are in a dedicated pediatric burn unit. Always trust your mama instincts, but try to trust them too. Like the nurse said, they do this ALL the time (sadly). In a major referral center like UVA, they will know what is the best course to follow. Sending lots of prayers for comfort and guidance. Hang in there mama!

brittone2
12-23-2009, 01:20 PM
It sounds like she is in wonderful hands. I hope that things go as smoothly as they can for all of you.

Your little one and your entire family continue to be in my thoughts.

pinkmomagain
12-23-2009, 03:06 PM
Oh my goodness. Tears in my eyes. Sending positive thoughts your way. I hope everything goes exactly the way you're hoping for. And hope that your dd remains as comfortable as possible and heals quickly!!!!!

jgenie
12-23-2009, 04:35 PM
I just saw your update - prayers for your daughter, your family and those caring for her. :hug:

Twoboos
12-23-2009, 04:38 PM
P&PT that things are going well.

justlearning
12-23-2009, 04:40 PM
I have been off the boards for a few days and am so very, very sorry to read about your daughter's burns. I will pray for wisdom for the doctors in making the best decision and strength and peace for her and your family as you go through this terrible ordeal.

trales
12-23-2009, 05:05 PM
We will keep praying for you.

mommyp
12-23-2009, 05:11 PM
P&PT and lots of mojo coming your way!

elephantmeg
12-23-2009, 05:28 PM
just posted an update on the origional post

bubbaray
12-23-2009, 05:29 PM
Praying for you and your precious daughter.

missym
12-23-2009, 05:49 PM
Sending continued P&PT for healing for your little girl and strength for you. :grouphug:

rlu
12-23-2009, 07:25 PM
Praying for you all.

wendmatt
12-23-2009, 07:41 PM
I was so praying that she wouldn't need the grafts, I'm glad she is OK, praying for you that she heals super fast. Poor little thing. Merry Christmas anyways, hope she is able to enjoy it a bit, you too. Take care
Wendy

Carrots
12-23-2009, 07:58 PM
Many many hugs to you and dd. :grouphug:

clc053103
12-23-2009, 08:08 PM
Prayers and hugs to you and your DD! Praying for a quick recovery.

pb&j
12-23-2009, 08:10 PM
Wishing her a speedy and painless recovery. Hang in there, mama.

ThreeofUs
12-23-2009, 08:19 PM
Update

Thanks for the update - I kept checking back to see how things went.

Sending P&PT that she heals quickly, has no complications from the green baddies.

:grouphug:

I know this all is *so* hard on you, so I'm sending you lots of hugs, too.

You're doing a really great job!

SASM
12-23-2009, 08:32 PM
Meg,

Thank you for the update...I've been thinking about you today. HUGE hugs and sending LOTS of P&PTs your way. You have quite the brave DD. Good luck with the graft and lung situation. Keep coughing, baby!!

Melarina
12-23-2009, 09:01 PM
You and your precious girl are in my thoughts and prayers.

almostamom
12-23-2009, 09:39 PM
More prayers are on their way for all of you.

Linda

hellokitty
12-23-2009, 09:45 PM
{{{HUGS}}} I hope everything goes smoothly for her and she heals quickly.

MontrealMum
12-23-2009, 09:56 PM
Thanks for the update and many, many HUGS :hug: :hug: :hug: :hug: :hug: I've been thinking about your DD every day, and my mom is even asking after all of you. I'll continue to send lots of P&PT that she's comfortable soon.

MamaMolly
12-23-2009, 10:22 PM
Continued love, support P & PT coming your way. I think about you guys several times a day! Lots of :grouphug:

cuca_
12-23-2009, 10:30 PM
I continue to keep your daughter and your family in my thoughts. I hope that she heals quickly and that she is out of PICU soon. :hug:

maestramommy
12-23-2009, 10:40 PM
:hug::hug::hug:Still sending you prayers and good thoughts. That's all:hug::hug:

crl
12-23-2009, 10:59 PM
Continued prayers.

Catherine

calv
12-23-2009, 11:29 PM
OMG I'm just now catching up on your whole story. VERY SCARY! Our nices hair caught on fire on a yankee candle and burn 1/2 her face. Yeah grafting, very intense stuff and many long nights in the hospital. I can't even imagine it because we all know how god awful painful a tiny burn on your finger can be.

Enough babbling. My heart, prayers and good thoughts go out to you, your DD and whole family. Please continue to keep us posted! {{{{{}}}}}

Naranjadia
12-23-2009, 11:53 PM
Oh my word! My thoughts and prayers go out to you and your family and especially your DD. I hope those antibiotics do their thing and she heals up well.

kozachka
12-24-2009, 12:24 AM
Sending lots of positive thoughts your DD's way. Hope she recovers quickly and is out of PICU soon. And lots of :22: to all of you.

Happy 2B mommy
12-24-2009, 12:47 AM
Keeping your sweet Mary in my prayers.

american_mama
12-24-2009, 02:23 AM
Sounds like you are holding it together, but gee, what a tough experience. I hope all the experts there and you with your professional and motherly knowledge are getting just the right balance for your DD.

thomma
12-24-2009, 08:51 AM
You are all in my thoughts and prayers.

Kim
ds&dd -6

dcmom2b3
12-24-2009, 10:23 AM
Continued prayers for all of you, Margaret. :hug::hug: too.

jse107
12-24-2009, 01:46 PM
Thinking of you...keep us updated. I hope that DD is feeling okay today. Let us know if she would like anything--stuffed animals or whatever! Same for your DS, who I'm sure is struggling with this too.

elephantmeg
12-24-2009, 04:19 PM
I feel like I'm cought in groundhog day. We're making progress but it is oh so slow. Her face is healing nicely and I know there is work going on under those bandages but it is so hard to keep her drinking/eating like I know she needs to. She hasn't been able to eat today yet since she had an 11 debridement and it lasted until 1 and she hasn't really woken up yet which is good since we had to let the special bandage over her graft site dry out before she can be moved. It's just hard. THe PICU attending herself did the sedation today for her procedure and she says we're not moving out today NOR getting "floor orders". The PICU is hopping today so while you're saying a prayer for us I know there are other parents up here who are even more devestated than we are. I guess I need to wake her up soon and see if she'll drink. On a happier note her hair got washed today and looks so nice again. I have to put ointment in it again soon but I'm enjoying being able to kiss her head!

dcmom2b3
12-24-2009, 04:49 PM
More hugs, mama. Please give her a kiss from the BBB, too.

Echoing a pp, please tell us if there's anything that you need IRL and we'll get it to you. Do you have family close by to help with DS? Are you and DH eating? Whatever it is, just let us know.

hillview
12-24-2009, 05:34 PM
HUGS mama and to your little girl and whole family!!
/hillary

Melanie
12-24-2009, 05:46 PM
Hugs to both of you. I hope she continues to heal well.

elephantmeg
12-24-2009, 05:58 PM
yes we have family nearby. DS was with the IL's the first few days and now is with my parents. My mom says she can stay all week which is a relief. She's unemployed right now. We'll prob send DS to the babysitter some or all of next week since my dad can't stay and I think mom finds him a little much in addition to all the house stuff. We're doing pretty well eating. DH has been taking care of me. I hate to leave her! Thanks again everyone.

SnuggleBuggles
12-24-2009, 06:23 PM
I can't even imagine how you must be feeling. I am really sorry that this happened. I wish time could speed up for you and she would be all better!

Beth

LexyLou
12-24-2009, 06:24 PM
I'm glad the surgery is over and went well. I'm still thinking of you all and so sorry for this horrible situation. :(

Fairy
12-24-2009, 06:26 PM
So happy that there's progress! Thinking of you and DD. Her progress sounds good, and sending positive thoughts to you and all the kids fighting for health there by you.

Count me in to chip in for anything you might need for Mary, for you and DH, whatever. Don't be afraid to speak up, cuz I mean it, and I know others do, too.

-- Hil

hillview
12-24-2009, 07:38 PM
Count me in to chip in for anything you might need for Mary, for you and DH, whatever. Don't be afraid to speak up, cuz I mean it, and I know others do, too.
:yeahthat:
/hillary

brgnmom
12-24-2009, 07:49 PM
I'm really sorry that this happened to your daughter and you will all be in my prayers. I'm glad that there has been progress, and I'll be praying for a full recovery for your daughter.

MontrealMum
12-24-2009, 09:14 PM
Count me in to chip in for anything you might need for Mary, for you and DH, whatever. Don't be afraid to speak up, cuz I mean it, and I know others do, too.



:yeahthat:

trales
12-24-2009, 10:07 PM
We will keep praying for you and your DD.

JTsMom
12-24-2009, 10:11 PM
Thinking of you. :hug:

Aishe
12-24-2009, 11:47 PM
Lots and lots of PT headed your way. FWIW, my DH had an almost identical incident and injury when he was three. He has scarring, of course, but it has never impaired his life in any way.

ThreeofUs
12-25-2009, 06:51 AM
We're all thinking of you up here, and wishing you and your DD everything good. I was telling my DH and DS1 about your poor DD, and they ask about you every day now.

Like Hilary, we really wish we could help. Let us know if we can do anything - even if it's just sending sparkly stars to hang from the ceiling.

Hugs to your DD, you, and your family.

elephantmeg
12-25-2009, 08:32 AM
So here we are still in the PICU. Sigh. I had a hard time getting her awake after her sedation yesterday and then a hard time getting her to eat and drink. So we may be headed towards trying the NG again. She is still running fevers which is concerning the plastic surgery group. They had run some cultures while she was in OR which I haven't heard anything about so I'm guessing negative. I'll ask the next resident I see :) Her face looks better each day and she was awake some last night and started singing twinkle twinkle. I sent DH home to be with DS and to go to his family's Christmas eve thing so it's just DD and I today-they are calling for sleet/freezing rain so if that pans out he won't be back until tomorrow. No word yet on a time for a sedation face scrubbing so at this point she can't eat until I know. Thanks to everyone for your offers-and have a very Merry Christmas!

stefani
12-25-2009, 12:10 PM
Sending healing vibes and P & PT to your daughter and you.

:grouphug:

Swimfreak78
12-25-2009, 12:39 PM
Thoughts and prayers for you and your family!

:22:

hillview
12-25-2009, 12:48 PM
Merry Christmas to your family. Glad to hear things are moving forward, I know how tedious this all can be (we spend a week in PICU with DS #2 following brain surgery). You are in my thoughts and prayers!
/hillary

wellyes
12-25-2009, 01:50 PM
Merry Christmas! We're thinking of you & your family this morning. Glad to hear that there is progress :).

BabyMine
12-25-2009, 01:55 PM
Merry Christmas. It is so cute that she is singing twinkle twinkle. Your whole family isin our thoughts and our prayers. I hope you find some time to get something to eat and get some rest. I have done weeks in the hospital with M so I know how hard it can be.:hug:

oneplustwo
12-25-2009, 03:46 PM
You and your family are in my thoughts today, Margaret. Sending your DD and all the children there in the PICU lots more P&PT.

- Anne

doberbrat
12-25-2009, 05:51 PM
thinking of you today *hug*

elephantmeg
12-25-2009, 10:53 PM
well the mojo is working! DD has been awake and alert practically all day. She did get the NG tube and it has been SO NICE not to spend all day trying to push her to eat. She's at that age that the more you push the worse it gets! She voluntarily fed herself 1/2 a pudding. This evening her angel of a night shift nurse took us on a field trip to see a bunny, a big fish tank, the big christmas tree on another peds unit (where she got ANOTHER present) and then best of all to see a real live baby! The mom was so sweet and we had a nice chat. Then she brought us back and put a bow in DD's hair thing that is keeping her NG tube in and painted her nails. It now really feels like a special day. DH stayed home since the weather was iffy. He and DS and the grandparents are all comming tomorrow. It's been a week since I've seen DS and I miss him!

Naranjadia
12-25-2009, 10:55 PM
Sounds like you've got some great staff there at the hospital. Glad she was able to have a special day and things are looking up!

mousemom
12-25-2009, 11:21 PM
Merry Christmas! We've been thinking about you and your family today. Glad there are angels like that nurse around to help make this day special for you both.

infomama
12-25-2009, 11:28 PM
Been thinking about you guys!!! So glad to her each day is getting better. Praying for continued healing and comfort for you little one. Merry Christmas.

Clarity
12-25-2009, 11:34 PM
:grouphug: For you all. What a challenge for her to be in the PICU over the holidays but what a wonderful nurse she had. I'm so glad. I've been thinking of you each day. I'd like to send something for her, or you! Would you be willing/able to pm an address?

niccig
12-25-2009, 11:40 PM
What a lovely nurse. I'm glad she was able to make it a special day for DD. Sending all the PPTs for a quick recovery.

ellies mom
12-26-2009, 12:52 AM
Thank you so much for taking the time to update us. I didn't post earlier but I've been following your updates and your family is in my prayers.:hug:

mommy111
12-26-2009, 09:59 AM
Oh Meg, just saw you post, hugs to you and to DD. You are in our thoughts and prayers. Keep strong!

JTsMom
12-26-2009, 10:43 AM
Sending more mojo and hugs. :hug: I'm so glad to hear you had such a wonderful nurse- they really do make all the difference. I hope the weekend goes really well for you guys.

hillview
12-26-2009, 10:44 AM
Oh Meg so glad it sounds like a little easier with the NG. Hugs!
/hillary

wimama
12-26-2009, 12:04 PM
Still praying for her! Glad to hear she is making progress! I hope you all enjoy your family visit.

KpbS
12-26-2009, 12:39 PM
Praying for your DD. Hope each day is better than the previous one.

mariza
12-26-2009, 03:09 PM
I haven't posted yet, but have been reading your updates and just took a peek at your blog. I'm so sorry that you and your family are going through this! Definately post if there is anything you need (besides P&PT which are unlimited in supply!) :grouphug:

jgenie
12-26-2009, 03:24 PM
:hug: Glad to hear your daughter is doing better. I thought of you all day yesterday and said a prayer each time. Will continue praying for healing and that you will be home as a family very soon. :hug:

g-mama
12-26-2009, 05:31 PM
Meg, I thought of you yesterday on Christmas and hoped you and your dd were doing okay. I tell ya, I have a whole new level of appreciation and admiration for PICU nurses - all nurses - after last week. I'm so glad you had a good one who took special care of you guys on Christmas. I am keeping you in my prayers and continuing to look for updates from you.

shawnandangel
12-26-2009, 05:42 PM
Continuing to send prayers for your family. I hope you have a wonderful visit with your family today!!!

amandabea
12-26-2009, 07:05 PM
Glad to hear she had a special day. Continuing to keep you, your family and especially Mary in my thoughts and prayers.

SkyrMommy
12-26-2009, 10:31 PM
:hug:

Keeping Mary, you & your family in our thoughts and prayers.

elephantmeg
12-28-2009, 04:34 PM
well her skin grafts look great. But I can't find her rt nipple. Um... where did it go. He had said he wasn't going to mess with it and didn't mention it after surgery so I hope it's under the swelling/sutures somewhere. Other than that she looks fabulous! Her forehead is still sloughing/healing and needing the daily scrubbing and she's still well wrapped but looks so much better. I am soooooooooooooooooooo thankful. Oh and we almost lost the NG tube (it clotted) but the nurse finally got it going with sprite so whew!

Fairy
12-28-2009, 04:44 PM
Thank you for the update! We're all still mojo'ing for Mary and for all of you!

elizabethkott
12-28-2009, 04:46 PM
Sending you and your DD many, many prayers, positive thoughts, and supermojo. (((((hugs)))))

JTsMom
12-28-2009, 05:05 PM
So glad to hear the grafts are looking good! Sounds like a big step in the right direction! :)

maestramommy
12-28-2009, 05:19 PM
Great update! Still thinking of your DD!:yay::cheerleader1:

Melanie
12-28-2009, 06:00 PM
I'm glad she is healing and I hope you find her nipple under there somewhere.

trales
12-28-2009, 06:22 PM
I am so glad to hear the good updates. We will keep praying for you.

ThreeofUs
12-28-2009, 06:58 PM
We've been reading your blog, and are *so* glad to hear that Mary looks good and is healing. You're in our thoughts and prayers.

hillview
12-28-2009, 07:07 PM
Thanks for the link to the blog. Glad today was a good day! Still in our thoughts and prayers.
/hillary

katydid1971
12-28-2009, 07:39 PM
You have been in my thoughts and prayers since I first read about what happened. I will keep you all in my prayers. Lots of hugs to you and to her!!!!!

elephantmeg
12-29-2009, 01:42 PM
her nipple was there! I feel soooooooooo much better!

elektra
12-29-2009, 01:46 PM
Phew on the nipple! So glad things are looking better for everyone. :)

crl
12-29-2009, 01:49 PM
Continued prayers for your daughter and the whole family!

Catherine

MamaMolly
12-29-2009, 01:55 PM
Continued hugs and prayers for you guys! Tons of love coming your way. Glad to hear the nipple update, too.

lchang25000
12-29-2009, 02:00 PM
Prayers to you and your family during this difficult time. Glad to hear things are slowly improving!

WatchingThemGrow
12-29-2009, 02:01 PM
glad all the parts are there! It was nice to be able to read the blog and see a pic of her smile :) Praying for you all during this time!

JustMe
12-29-2009, 03:01 PM
Glad to hear the good news updates! Thinking of you and your family.

trentsmom
12-29-2009, 08:28 PM
This is such wonderful news! I hope you are able to go home soon. It's no fun trying to get any rest in a hospital.

jse107
12-30-2009, 12:30 AM
Just sending you more positive thoughts! Hope progress continues to be good!

Melanie
12-30-2009, 12:38 AM
Wow, what a fine line to walk with the sedation.

I hope tomorrow is a very healing day.

zoestargrove
12-30-2009, 10:40 AM
so relieved to hear she is healing well. I hope you are home soon.

elephantmeg
12-30-2009, 04:27 PM
today is going pretty well. DD is eating some. We did see the plastics resident who says he thinks we are here through the weekend again :(. We are working with the dietitian to modify her tube feedings to just at night so she'll be hungrier during the day. As soon as we have a time for sedation tomorrow we'll be able to implement that. OT came and showed me how to stretch her arms out (really easy) and we've had lots of visitor including DS who got to see DD for the first time. They did well. Now its rest time!

gatorsmom
12-30-2009, 05:39 PM
I don't know how I missed your posts about this! I'm so sorry this is happening to you, your family and your daughter. I'm sending many prayers and well wishes and hopes for you all. Your daughter is incredibly lucky to have you as a mom. :hug:

SweetTooth
12-31-2009, 07:01 AM
Thank you for the updates. I am continuing to send positive thoughts your way.

jgenie
12-31-2009, 08:21 AM
t and we've had lots of visitor including DS who got to see DD for the first time. They did well. Now its rest time!

So glad to hear your DS got to see DD and that it went well. Continued prayers for all of you and that she'll get to go home soon.

elephantmeg
12-31-2009, 09:54 AM
She did great today with no sedation for her dressing change-just IV fentanyl. Tomorrow we do it with just oral meds and if she does OK with that we go HOME!!!!!!!! We took her NG tube out too-it was clogging- and she's eating some so hopefully that will go well too! I am soooooooooooooooooo happy! She did so well today!

ThreeofUs
12-31-2009, 10:24 AM
She did great today with no sedation for her dressing change-just IV fentanyl. Tomorrow we do it with just oral meds and if she does OK with that we go HOME!!!!!!!! We took her NG tube out too-it was clogging- and she's eating some so hopefully that will go well too! I am soooooooooooooooooo happy! She did so well today!



Yayyyy!!! Whooo-hhooooo!!!

That's so great to hear!

dcmom2b3
12-31-2009, 10:27 AM
She did great today with no sedation for her dressing change-just IV fentanyl. Tomorrow we do it with just oral meds and if she does OK with that we go HOME!!!!!!!! We took her NG tube out too-it was clogging- and she's eating some so hopefully that will go well too! I am soooooooooooooooooo happy! She did so well today!


Oh Meg, this brought tears to my eyes. GO MARY GO!!!! Sending much love and many prayers and positive thoughts your way. :hug::hug:

SnuggleBuggles
12-31-2009, 10:28 AM
I really hope she is able to come home soon. It sounds really promising!!

Beth

JTsMom
12-31-2009, 10:31 AM
She did great today with no sedation for her dressing change-just IV fentanyl. Tomorrow we do it with just oral meds and if she does OK with that we go HOME!!!!!!!! We took her NG tube out too-it was clogging- and she's eating some so hopefully that will go well too! I am soooooooooooooooooo happy! She did so well today!


Yaaaaaay Mary! :cheerleader1: What a wonderful update! :) Crossing my fingers and toes that you all are able to go home, and that everything continues to go this well.

trales
12-31-2009, 11:15 AM
We will keep praying that she comes home soon.

Clarity
12-31-2009, 11:47 AM
I'm so glad she's been doing so well. I've been thinking of you both and will keep sending healing thoughts her way. Yay for great news!

Happy 2B mommy
12-31-2009, 11:56 AM
She did great today with no sedation for her dressing change-just IV fentanyl. Tomorrow we do it with just oral meds and if she does OK with that we go HOME!!!!!!!! We took her NG tube out too-it was clogging- and she's eating some so hopefully that will go well too! I am soooooooooooooooooo happy! She did so well today!

Wonderful News! I've been keeping all of you in my thoughts.

brittone2
12-31-2009, 12:28 PM
Hoping for continued recovery for Mary!! Sounds like she's doing great considering the circumstances.

shawnandangel
12-31-2009, 12:34 PM
Glad to hear everything is looking up! Sending prayers your way for Mary's continued healing and that you can go home real soon.

MontrealMum
12-31-2009, 01:04 PM
That's great news :yay: I will be sending you P&PT that you can go home soon - that must be so incredibly hard to be trapped at the hospital :(

Melarina
12-31-2009, 04:30 PM
What wonderful news! You and your DD are such strong and brave ladies! Praying for you all.

niccig
12-31-2009, 05:46 PM
I hope she's home soon. You both need to be home.

eliasmom
12-31-2009, 06:45 PM
Sending prayers that she continues to improve and that you get home soon.

amandabea
12-31-2009, 09:32 PM
Yay - that's a great update. Mary is such a little trooper. Happy New Years Eve to you all and wishes for getting back home soon. :hug: