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elliput
11-20-2010, 10:52 AM
In this thread you will find links to various resources available to parents of special needs children. They are sorted by topic. Please no discussion posts here, just links. If you have a link to add please respond under the correct topic.

elliput
11-20-2010, 10:55 AM
Easter Seals (http://www.easterseals.com/site/PageServer)

American Academy of Pediatrics (http://www.aap.org/)

Centers for Disease Control and Prevention (http://www.cdc.gov/)

National Institute of Mental Health (http://www.nimh.nih.gov/index.shtml)

Office of Special Education Programs (http://www2.ed.gov/about/offices/list/osers/osep/index.html)

Disability Scoop (http://www.disabilityscoop.com/)

elliput
11-20-2010, 10:56 AM
Wide Smiles (http://www.widesmiles.org/)

Foundation for Faces of Children (http://www.facesofchildren.org/)

cleftAdvocate (http://www.cleftadvocate.org/)

Cleft Palate Foundation (http://www.cleftline.org/) or
American Cleft Palate - Craniofacial Foundation (http://www.acpa-cpf.org/)

Washington Appleseed/Craniofacial Conditions (http://www.waappleseed.org/craniofacialconditions.html)

elliput
11-20-2010, 10:59 AM
Autism Society (http://www.autism-society.org/)

Autism Speaks (http://www.autismspeaks.org/)

Autism Research Institute (http://www.autism.com/)

Organization for Autism Research (http://www.researchautism.org/)

elliput
11-20-2010, 11:02 AM
Sensory Processing Disorder Foundation (http://www.spdfoundation.net/)

elliput
11-20-2010, 11:06 AM
CHADD (http://www.chadd.org/)

elliput
11-20-2010, 11:13 AM
Please add.

elliput
11-20-2010, 11:17 AM
Prematurity.org (http://www.prematurity.org/)

March of Dimes (http://www.marchofdimes.com/)

elliput
11-20-2010, 10:16 PM
Fun and Function (http://funandfunction.com/)

Beyond Play (http://www.beyondplay.com/index.htm)

Sensory Edge (http://www.sensoryedge.com/)

Do2Learn (http://www.do2learn.com/)

Gena
11-20-2010, 10:41 PM
Chromosome Disorder Outreach (http://www.chromodisorder.org/CDO/)

Unique: Rare Chromosome Disorder Support Group (http://www.rarechromo.org/html/home.asp)

Gena
11-20-2010, 11:04 PM
Resources for Oculocutaneous Albinism (OCA), Ocular Albinism (OA), and Hermansky-Pudlak Syndrome (HPS):

NOAH (National Organization for Albinism and Hypopigmentation (http://www.albinism.org/))

Albinism Fellowship (UK based) (http://www.albinism.org.uk/)

The Vision of Children (http://www.visionofchildren.org/)

Hermansky-Pudlak Syndrome Network (http://www.hpsnetwork.org/)

elliput
12-02-2010, 12:42 AM
United Cerebral Palsy (http://www.ucp.org/)

elliput
12-02-2010, 12:44 AM
National Down Syndrome Society (http://www.ndss.org/)

missym
06-25-2014, 09:52 AM
Thanks to hillview for providing these links:Great starting point
http://www.nldontheweb.org/

Private Facebook group (LOVE this group)
https://www.facebook.com/groups/5817612058/
There is a person on this facebook group who also runs a secret and private facebook group for parents of NLD/NLVD children, PM me for more info.

Blog by a head of a special needs school who also has NLD
http://www.mentalhelp.net/poc/view_doc.php?type=doc&id=46014&w=9&cn=113

Written by someone with NLD -- great first person account
http://thisnldlife.tumblr.com/

Blog by teenager with NLD
http://lifewithnvld.blogspot.com/

Q&A about NLD
http://nldnudibranch.tumblr.com/

NLD posts within Autism board on NLD
http://designforautistics.com/tag/nld/

hillview
06-25-2014, 11:09 AM
International Dyslexia Association
http://www.interdys.org/

National Center for Learning Disabilities
http://www.ncld.org/types-learning-disabilities/dyslexia/what-is-dyslexia

2 great books
The Dyslexic Advantage
http://www.amazon.com/The-Dyslexic-Advantage-Unlocking-Potential/dp/0452297923/ref=sr_1_1?ie=UTF8&qid=1403708722&sr=8-1&keywords=dyslexic+advantage

Overcoming Dyslexia
http://www.amazon.com/Overcoming-Dyslexia-Complete-Science-Based-Problems/dp/0679781595/ref=sr_1_2?ie=UTF8&qid=1403708722&sr=8-2&keywords=dyslexic+advantage

Decoding Dyslexia
http://www.decodingdyslexiama.org/