JTsMom
07-13-2011, 02:35 PM
We recently switched peds, and the new one is considered "the" ped in this area to see if you have a SN child. She definitely has a different approach, but is a regular MD. She's very big on GFCF diets, and supplements. She ordered a urine organic acids test through Great Plains for J, and recommended a bunch of supplements based on the results.
Honestly, the whole thing makes me very nervous, but after doing a very quick Google search, just to get an idea of what these things even are, I'm even more nervous about one. If you have any knowledge about this stuff, please chime in. I know absolutely nothing about supplements, and don't even know where to start.
Here's what her notes say:
Urine OAT reviewed:
*Mild elevation of 2 fungal markers- recommend Probiotics daily (Kirkman ProBioGold or equivalent)
*Beneficdial flora markers low normal- recommend probiotics daily
*HVA &VMA Low normal range-recommend high quality multivitamin (eg Kirkman Super NuTHera or EveryDay MVI) that will have increased vit B levels. Other option is to add a B complex in the morning Magnesium will also be helpfulf (epsom salt in bath or mag glycinate orally)
*5_HIAA (serotonin) low- Recommend ading 50 mg at night of 5-HTP May increase by 50 mg each week to a max dose of 200mg/night. I would try this first before starting any stimulant. *****
*Eleveated quinolinic acid. Rec 5-HTP, Omega 3s and Vit C
*Elevated methylmalonic acid= low methyl B12- Rec the injections would be best 3x/week, but can start with a sublingual dose 3x/week.
*Low B vits and CoQ10 low rec high quality MVI w/higher values of these
***** The 5-HTP is what really freaked me out b/c of this:
http://en.wikipedia.org/wiki/5-Hydroxytryptophan
"
Because 5-HTP has not been thoroughly studied in a clinical setting, possible side effects and interactions with other drugs are not well known.
Administered serotonin has been shown to increase the risk of heart valve disease in animals", which is scary enough on it's own, but add in Jason's totally re-plumbed heart anatomy, along with a missing pulmonary valve, and I'm thinking there is no way I want to be messing around with this stuff!
Probiotics, multivitamin, Omega 3's aren't things I'm really worried about. I also have to figure out if any of these are Feingold approved.
Honestly, the whole thing makes me very nervous, but after doing a very quick Google search, just to get an idea of what these things even are, I'm even more nervous about one. If you have any knowledge about this stuff, please chime in. I know absolutely nothing about supplements, and don't even know where to start.
Here's what her notes say:
Urine OAT reviewed:
*Mild elevation of 2 fungal markers- recommend Probiotics daily (Kirkman ProBioGold or equivalent)
*Beneficdial flora markers low normal- recommend probiotics daily
*HVA &VMA Low normal range-recommend high quality multivitamin (eg Kirkman Super NuTHera or EveryDay MVI) that will have increased vit B levels. Other option is to add a B complex in the morning Magnesium will also be helpfulf (epsom salt in bath or mag glycinate orally)
*5_HIAA (serotonin) low- Recommend ading 50 mg at night of 5-HTP May increase by 50 mg each week to a max dose of 200mg/night. I would try this first before starting any stimulant. *****
*Eleveated quinolinic acid. Rec 5-HTP, Omega 3s and Vit C
*Elevated methylmalonic acid= low methyl B12- Rec the injections would be best 3x/week, but can start with a sublingual dose 3x/week.
*Low B vits and CoQ10 low rec high quality MVI w/higher values of these
***** The 5-HTP is what really freaked me out b/c of this:
http://en.wikipedia.org/wiki/5-Hydroxytryptophan
"
Because 5-HTP has not been thoroughly studied in a clinical setting, possible side effects and interactions with other drugs are not well known.
Administered serotonin has been shown to increase the risk of heart valve disease in animals", which is scary enough on it's own, but add in Jason's totally re-plumbed heart anatomy, along with a missing pulmonary valve, and I'm thinking there is no way I want to be messing around with this stuff!
Probiotics, multivitamin, Omega 3's aren't things I'm really worried about. I also have to figure out if any of these are Feingold approved.