Any Cholesteatoma experience?

[Jen841]

4 years ago detection/removal
3 years ago surgery - no clinical evidence of return
This summer - it is back!

I hear mixed return rates for kids. Small town Dr says 80% return rate for kids. CHOP Dr said 20% return and within a year.

Next surgery to be scheduled ASAP. Disney trip is at risk.

[strollerqueen]

4 years ago detection/removal
3 years ago surgery - no clinical evidence of return
This summer - it is back!

I hear mixed return rates for kids. Small town Dr says 80% return rate for kids. CHOP Dr said 20% return and within a year.

Next surgery to be scheduled ASAP. Disney trip is at risk.
Unfortunately, lots of experience. My middle son has had five ear surgeries, starting in K. Four times cholesteatomas were removed, and he's had three complete inner ear reconstructions. Feel free to PM me if you have any questions. Best of luck to you; it's so hard.