Update: Ds in hospital - P&pt request

[firstbaby]

Another update: I can't thank everyone enough for the P&PT. DS got to come home on Sunday night and he's doing well. His ANA and Lyme both came back negative. So, when we left there were still a couple of tests not back but they are confident that the sinusitis, flu b and pneumonia (with affusion - not sure about spelling) were the culprits. We go back to the Infectious Disease doctor next week. It is so nice to be home and be a family again, but I have to admit I'm starting to process everything from last week and I feel very overwhelmed. I also feel on edge - like how could he have been so sick and on these powerful abx? Why didn't anyone else in the family get sick? I hate to have these thoughts, but I'm just on edge hopeful that they really did get everything checked out. Again, thank you to everyone so so much. It was a super emotional week and it was uplifting to know all the P&PT DS was getting from you all. I will update again after the ID appointment if there's any change in what they feel is going on with him.

Update on 3/16. They are still waiting for a few more tests to come in like ana and lyme panel. plus they are monitoring his ck levels - theyve been elevated over the last few days. but we know he at least has sinusitis, flu b and pneumonia. they did an us last night to decide if they need to drain the fluid or not. thank u so much for tr p&pt. i know we still have a ways to go and more tests to see through. his eyes have been able to open more and hes been more aware and alert so that has been great!

It is a really long and crazy story, but we took my ds to the er on Monday, came home and then went to another more pediatric focused er on Tuesday where he was admitted. Since Monday he has had two cat scans, a chest X-ray, spinal tap, MRI, and lots of blood draws. We are still trying to figure out how everything fits together. He has been through soooo much. To add another layer, my day's company was sold and they are transitioning to the new company. Well, they pushed the close date up and it goes in to effect...tomorrow. So we are going from an awesome ppo to an hsa and I can't get anyone in benefits to call me back. I am so tired and stressed and I just want my active happy little guy back. I haven't sen my other two kids bc they have ds in isolation and I just can't leave him. Please if you can spare some P&pt that ds will turn a corner here, we will get answers, and the insurance nightmare will somehow not happen, I would really appreciate it. I don't want ds to see me cry so I sob next to his bed every night.

[KpbS]

Saying prayers for him! Hope you get a diagnosis soon and he can come home. :hug: :hug: :hug:

[alexsmommy]

Lots of P&PT. How scary and stressful.

[kaharris83]

Sending you strength and PTs. Hoping answers come soon and you're little guy gets better quickly!!

[anonomom]

I'm so sorry. PTs coming your way.

[KrisM]

Sending positive thoughts your way.

[barkley1]

Praying for you all:hug:

[Philly Mom]

Sending you lots of positive thoughts!

[Mommy_Mea]

PTs coming your way, how scary! I hope you get some good news soon.

[Kindra178]

On the way. Thinking of you.

[Momit]

P&PT for your sweet boy and your entire family.

[firstbaby]

Just heard back from benefits person and they are aware of our situation. There is no work around to the insurance transition going tomorrow but at least I got my questions answered. Thanks all for the P&pt. I'm starting to break here a little and needed some support.

[SnuggleBuggles]

I'm so sorry. I (((((((((hugs)))))))

[marymoo86]

So sorry for you and the added stress of insurance on top of being there for your DS.

I hope there's a quick recovery and speedy solutions to your insurance issues.

[DietCokeLover]

Oh my goodness! Saying a prayer for your family right this minute.

[hopeful_mama]

:hug: and lots of PTs. Hope things improve and quickly. Will be thinking of your family.

[babygirl1029]

Prayers for you, DS and your family!

[JanBaby]

Sending hugs and positive thoughts. We went through something similar with DS - you'll get through it. Be strong!

[georgiegirl]

Hugs. How scary. My thoughts are with you.

[boilermakermom]

Sending hugs and prayers for you and your little guy!!!!

[scrooks]

Sending prayers your way!

[MamaInMarch]

Oh goodness. Many prayers and positive thoughts!

[wellyes]

Thinking of you here. Good luck.

[missym]

Sending lots of P&PT your way. Insurance is the last thing you should have to worry about right now! I'm sorry you're all going through this and hope your DS is feeling better soon. :grouphug:

[kdeunc]

Sending you prayers for a diagnosis and I hope your son is on the mend quickly! :hug:

[elbenn]

Sending P & PT your way.

[TwoBees]

:hug: Sending lots of P&PT for you and your family.

[hillview]

pt and mojo to you and DS!

[Dream]

Sending lots of P & PT your way, hope your little guy gets better soon.

[larig]

healing thoughts for your DS.

[elizabethkott]

Sending prayers and positive thoughts that your little guy will be on the mend soon!!!

[wendibird22]

Many P&PTs coming your way.

[candybomiller]

P&PT. Hugs.

[zag95]

Sending positive thoughts your way. Can the hospital work with you on the benefits stuff? Maybe there is someone there who can help.

[buddyleebaby]

Sending prayers!

[JustMe]

Oh my! Sending lots of PTs your way. Glad to hear the insurance part has worked itself out and you don't have that worry anymore. Keep us posted.

[speo]

Lots of PTs and hugs for your DS and you and your family!

[div_0305]

Lots of P&PTs to you and your family! I hope your son gets diagnosed correctly ASAP and gets better soon!

[ZeeBaby]

Praying for your little guy. Hope all goes well and results are negative.

[Twoboos]

P&PT for your DS and for your family! :hug:

[mommylamb]

How frightening! Sending positive thoughts.

[Mopey]

You've got tons of p & pt coming your way Mama. Hang in there.

:hug:

[elektra]

PT for your DS. Hope you get some answers soon and that the insurance gets worked out ASAP.

[KLD313]

Positive thoughts headed your way that they figure it all out and he can go home.

[sarahsthreads]

Many, many P&PTs headed your way for strength, answers and a quick recovery! :hug:

Sarah

[Giantbear]

best wishes for a speedy recovery

[kwc]

P& PT for answers and speedy recovery! And yes, hopefully the hospital benefits people can work with you, but after you DS is feeling better.

[Myira]

Lots of P&PT for your DS and family. Hope DS feels better and everything sorts out soon.

[TwinFoxes]

P&Pt for you all. I can only imagine how scary this must be. :hug:

[MamaMolly]

P&PT on the way!!

[edurnemk]

P&PT coming your way. :hug:

[teresah00]

P&pt for a short stay and quick recovery


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[mackmama]

Oh how scary - I'm so sorry. Healing thoughts to your DS, and continued strength to you.

[lcarlson90]

I am sending lots of P & PT your way. I can't imagine how hard it must be to stay strong for your little guy and to be hurting so much on the inside. I hope they find a diagnosis soon.

[baymom]

Oh my goodness! I'm so very sorry you are going through this! Sending P & PT your way! Please keep us posted!

[FTMLuc]

Sending prayers your way!

[trcy]

:hug::grouphug::hug::grouphug:

[urquie]

Hugs and P&PTs coming your way!:hug::hug:

[elephantmeg]

oh, I am so sorry, sending you all P+PT!!!!!!!!!!!!!

[DrSally]

P and Pt!!!

[Melaine]

Saying a prayer...that sounds so hard!!

[Tenasparkl]

Poor guy!

[123LuckyMom]

Oh no!!! P&PT coming your way!!!

[trentsmom]

P & PT for you and your whole family.

[queenmama]

Prayers from me, too. I hope things start to turn around!

Lara

[lmh2402]

sending many p&pts for your whole family

:hug:, mama

hoping your little boy is all better very soon

and try not to worry (so much easier said than done), but try not to worry about the insurance/money part right now. :hug:

[joonbug]

Prayers for your family! Hope it all gets sorted out soon

[crl]

Prayers for healing and insurance coverage.

Catherine

[Binkandabee]

Thinking of all of you. I hope you get some answers soon!

[oneplustwo]

Oh my. Tons of P&PT headed your way!

[momm]

I am so sorry. P&PT

[weabie]

I'm hoping they figure things out and that he gets well soon! The insurance businesss just adds to the stress. Sending prayers to your family!

[HonoluluMom]

Sending lots of PTs your way!

[vludmilla]

I hope you get some answers soon and a quick recovery. Much PT your way!

[bisous]

That is so stressful. Sending prayers that everything works out for the best and your LO feels better soon!

[chlobo]

Sending prayers....

[waitingforgrace]

P&PT for your whole family :hug5:

[chottumommy]

Lots of P&PT going for your family and especially your LO.:hug5:

[Aishe]

Lots and lots of PTs for your son and your family.

[trales]

Lots of pp&t and hope he comes home soon.

[Melbel]

Sending heartfelt prayers and positive thoughts for answers, as well as recovery.

[daisyd]

Lots of P & PT. Hope your DS recovers soon.

[maydaymommy]

Thinking positive thoughts for you, your ds & your family.

Please take care of yourself, too!

My ds2 was in the hospital for just a few days, and though we knew what was wrong and he was not in grave jeopardy, the stress and the lack of sleep while staying with him there REALLY got to me. Try to get someone to relieve you for a bit so you can at least get some fresh air.

[AnnieW625]

Lots of ppt coming your way!

[theriviera]

Lots of PTs coming your way!! And lots of hugs too. :hug:

[plusbellelavie]

P&PT for your DS, you and your family and that you get positive answers to your questions soon! Lots of Hugs! Be strong we are all thinking of you and your family!

[LizLemon]

Oh my goodness - best wishes to your son and your entire family

[boltfam]

I'm so sorry you all are going thought this. P&PT for your DS and the rest of your family.

[melrose7]

Sending prayers your way

[Indianamom2]

I am so sory you're going through this. Nothing is scarier than when your child is sick and you don't know why/how to fix it.

Many prayers for a quick and healthy resolution.

And I know it's easy for me to say right now, but forget about the insurance stuff...it will get worked out. Right now, take care of yourself and your little guy.

:hug:

[mjs64]

Oh my. Your family will be in my thoughts.

[karstmama]

posting after reading the first page - i'm so sorry, and i'm sending all sorts of positive vibes.

[Rarick0]

Sending lots of P & PT for your son and family.

[liz]

Sending P&PT for you all :hug:

[MontrealMum]

Sending lots of P&PT :hug:

[gatorsmom]

Saying prayers for your DS and your family. :hug:

[infomama]

Sending you prayers and PT:hug:

[Beth24]

Thinking of you and your son.

[jgenie]

I'm so sorry you're going through this. :hug: P & PTs for you and your family.

[Kymberley]

Praying for you, your son, and your family. I'm so sorry you're going through this. :hug:

[avd3875]

Huge P&PT for your entire family.

[Tea4two]

Lots of P&PT for your DS, you and your family. Hopefully they will diagnose soon and recovery will be quick.

[sweetsue98]

Prayers for you and your family.

[ArizonaGirl]

P and PT coming your way.

If nothing else, the hospital will work with you on payment.

:hug:

[jbbhb]

PT for your whole family. I hope you get some answers soon.

[wendmatt]

How awful. pt & p to get well soon.

[santoki]

P and PT for your whole family, and a big hug to you....

[mum-to-be]

Prayers and positive thoughts for you all, including your other kids. Really hoping you have a great update very soon.

[ArizonaGirl]

Hope he is doing better and you have an update for us soon

[hillview]

thanks for the update. I've been thinking of you all. Glad things are improving. Hope it gets better very soon!

[ShanaMama]

Late to this thread but major p& pt coming your way. It sounds terrifying.

[citymama]

This is the first time I've seen this - no idea how I could have missed it. You must be so worried, but know that he is getting the best care. Sending massive amounts of P&PT your way, and to your DS. Big hugs, mama. :grouphug:

[crl]

Glad to hear of some improvement. Continued prayers.

Catherine

[MamaMolly]

Wow, how scary! Thanks for the update, more P&PT on the way!

[Pennylane]

I also just read your post. Thinking of you all and hoping you have some good news soon!

Ann

[brittone2]

Thinking of you and your family. I am sure it is overwhelming and scary for you right now. Please keep us updated, and know you are in our thoughts.

[firstbaby]

Thanks everyone! I just posted another update in the OP. I so appreciate everyone's P&PT!

[Melbel]

Another update: I can't thank everyone enough for the P&PT. DS got to come home on Sunday night and he's doing well. His ANA and Lyme both came back negative. So, when we left there were still a couple of tests not back but they are confident that the sinusitis, flu b and pneumonia (with affusion - not sure about spelling) were the culprits. We go back to the Infectious Disease doctor next week. It is so nice to be home and be a family again, but I have to admit I'm starting to process everything from last week and I feel very overwhelmed. I also feel on edge - like how could he have been so sick and on these powerful abx? Why didn't anyone else in the family get sick? I hate to have these thoughts, but I'm just on edge hopeful that they really did get everything checked out. Again, thank you to everyone so so much. It was a super emotional week and it was uplifting to know all the P&PT DS was getting from you all. I will update again after the ID appointment if there's any change in what they feel is going on with him.

Update on 3/16. They are still waiting for a few more tests to come in like ana and lyme panel. plus they are monitoring his ck levels - theyve been elevated over the last few days. but we know he at least has sinusitis, flu b and pneumonia. they did an us last night to decide if they need to drain the fluid or not. thank u so much for tr p&pt. i know we still have a ways to go and more tests to see through. his eyes have been able to open more and hes been more aware and alert so that has been great!

It is a really long and crazy story, but we took my ds to the er on Monday, came home and then went to another more pediatric focused er on Tuesday where he was admitted. Since Monday he has had two cat scans, a chest X-ray, spinal tap, MRI, and lots of blood draws. We are still trying to figure out how everything fits together. He has been through soooo much. To add another layer, my day's company was sold and they are transitioning to the new company. Well, they pushed the close date up and it goes in to effect...tomorrow. So we are going from an awesome ppo to an hsa and I can't get anyone in benefits to call me back. I am so tired and stressed and I just want my active happy little guy back. I haven't sen my other two kids bc they have ds in isolation and I just can't leave him. Please if you can spare some P&pt that ds will turn a corner here, we will get answers, and the insurance nightmare will somehow not happen, I would really appreciate it. I don't want ds to see me cry so I sob next to his bed every night.

I am so happy to hear that your DS is home and hopefully on the road to recovery.

I would definitely request a copy of the Lyme testing. The VAST majority of doctors rely upon the CDC's surveillance/reporting criteria, that was not intended to be used for diagnostic purposes (and misses about 1/2 the actual cases per numerous studies). (1) make sure that they ran a Western Blot (not just an ELISA); and (2) if they ran a Western Blot, be sure to see if there were any positive bands. If there are positive bands, I would be happy to point you to research re. the significance of various bands (species specific bands are highly indicative of Lyme even if the patient does not meet the CDC's surveillance criteria). I did not catch all of your son's symptoms, but the Lyme and ANA test orders show that the doctors are at least considering Lyme (which is great). Just make sure you are not ruling out Lyme prematurely because the tests are not very accurate (particularly in the first 6 weeks). Spinal taps for Lyme are even less accurate (only catching about 10% of the cases from what I have read). Hugs to you and your sweet boy.

[Kindra178]

Pt. Keep us updated.