Philly Mom
03-06-2015, 01:08 PM
Our ped wants us to take DD2 (16 months) to an endocrinologist. Here is why: since birth DD2 has shivered. Babies aren't supposed to do that. At day 2 of birth, DD2 had seizures. She shivered during the EEG they did and it did not show up on her EEG so they don't think it is neurological. I discussed it with her neurologist multiple times. He dismissed it each time. I am looking for a new neurologist to seek a second opinion at this point.
Fast forward to last week. When we got DD2 out of bed she was not responding the way she should. She could not stop shivering and kept falling asleep on the changing table. She never falls asleep in random places, even when I have woken her up in the middle of the night for a flight, or when we flew to the UK and she barely slept on the plane. My kids are light sleepers. She had an upset stomach and had a blow out. She had not had much to eat the day before at all. We got her dressed to take her to school thinking she may have just been extra tired, and gave her milk. She drank 8oz in no time but still could not stop shivering and was still not responding the way she normally would. She just wasn't herself. We gave her more milk at school because she would not eat. I then left her at school and called the peds to get an appointment. I called school 15 minutes later and she still was not acting normal, so I turned around and picked her up. By the time I got there, she had snapped out of it and was herself (albeit still with an upset stomach). She had finished the additional milk we gave her before I left (another 4oz). In total, it was about 30 mins after she first started to drink her milk before she snapped out of it. She often shivers in the morning while we get ready or around dinner time or after we get out of the bath. School said they have never seen it before. Her ped thinks that either she had a seizure before we got her (she does not think this is that likely) or that she had a blood sugar event and the shivering is actually a consequence of blood sugar issues. My ped is trying to get me into CHOP in the next two weeks. The ped did not do any blood tests because she was fine by the time we got an appointment later in the day, though from talking with CHOP I know they want us to have some tests done before we go for an appointment. Any insights? Any questions I should ask of either my ped or the endocrinologist or new neurologist would be appreciated. FWIW, she is developing normally and is a very happy kid. She smiles most of the time, is interactive, and while has only 1/2 words, fully comprehends everything and can already follow multi-part directions.
Fast forward to last week. When we got DD2 out of bed she was not responding the way she should. She could not stop shivering and kept falling asleep on the changing table. She never falls asleep in random places, even when I have woken her up in the middle of the night for a flight, or when we flew to the UK and she barely slept on the plane. My kids are light sleepers. She had an upset stomach and had a blow out. She had not had much to eat the day before at all. We got her dressed to take her to school thinking she may have just been extra tired, and gave her milk. She drank 8oz in no time but still could not stop shivering and was still not responding the way she normally would. She just wasn't herself. We gave her more milk at school because she would not eat. I then left her at school and called the peds to get an appointment. I called school 15 minutes later and she still was not acting normal, so I turned around and picked her up. By the time I got there, she had snapped out of it and was herself (albeit still with an upset stomach). She had finished the additional milk we gave her before I left (another 4oz). In total, it was about 30 mins after she first started to drink her milk before she snapped out of it. She often shivers in the morning while we get ready or around dinner time or after we get out of the bath. School said they have never seen it before. Her ped thinks that either she had a seizure before we got her (she does not think this is that likely) or that she had a blood sugar event and the shivering is actually a consequence of blood sugar issues. My ped is trying to get me into CHOP in the next two weeks. The ped did not do any blood tests because she was fine by the time we got an appointment later in the day, though from talking with CHOP I know they want us to have some tests done before we go for an appointment. Any insights? Any questions I should ask of either my ped or the endocrinologist or new neurologist would be appreciated. FWIW, she is developing normally and is a very happy kid. She smiles most of the time, is interactive, and while has only 1/2 words, fully comprehends everything and can already follow multi-part directions.