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  1. #11
    Kendra Guest

    Default RE: Food Allergies: Good info for those that don't get it and don't want to

    Thank you so much for this. I sent it to my DH, Mom, sister, cousin who has an allergic son, and her mom.

  2. #12
    ilovetivo's Avatar
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    Default RE: Food Allergies: Good info for those that don't get it and don't want to

    I haven't even read thru all the links on the fatalities post. Another mom on kidswithfoodallergies.com did the research. I had several threads bookmarked on that site, which is where i get most of my food allergy info (along w/ my support group meetings and allergist.)
    DD 7 - outgrew dairy allergy 6/13/11 - She had FPIES http://bit.ly/WhatIsFPIES

  3. #13
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    Default RE: Food Allergies: Good info for those that don't get it and don't want to

    You're welcome to those that thanked me. Thanks to you all for finding the info helpful. I'm thrilled that I can help others now that I know more. A year ago, upon diagnosis, i was so overwhelmed I didn't know what to do. I wish I could do more. It's a cause I'm passionate about, but don't have the time or energy to dedicate much time to. I, too, still have great difficulties w/ people that don't get it. My MIL used to work in allergy (but not food) and it's still a struggle to have her get it. Back then when she was in the field, it's was nothing.

    Food allergies is the only disease that directly affects sufferers, their families and their communities. Those that are angy about the school policies should want research done as much as FA parents.

    I'd really love it if all of the BBB members read it, even if it doesn't affect them now. The way FA's are going, I bet at one point or another everyone will have a FA kid in their classrooms.

    If you want to help you can:

    1. Write a letter, email or call your congressman encouraging them to tell the federal government that we need more money for food allergy research

    AND

    2. PLEASE sign up for the Chicago Children's Memorial Food Allergy Study. Contact Deanna Caruso at (312) 573-7755. They have Saturday appointments and are at 2 locations: Chicago and Glenview IL. ALSO...they are accepting (and need) NON-allergy families too. I believe they help out of state (or area at the minimum) participate too.
    http://www.childrensmrc.org/allergy/study/
    Printable brochure - http://www.childrensmrc.org/docs/Foo...ies_UPDATE.pdf

    ETA: if you haven't noticed, I LOVE www.kidswithfoodallergies.org. They've been such a huge & invaluable help to me. Their message boards are phenomenal. Over 8,000 parents are on it and can help with anything you can thing of in relation to allergies, elimination diets (breastfeeding), recipes, support, reactions etc.

    DD 7 - outgrew dairy allergy 6/13/11 - She had FPIES http://bit.ly/WhatIsFPIES

  4. #14
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    Default RE: Food Allergies: Good info for those that don't get it and don't want to

    I was thinking how unfortunate it is that so many ppl had to actually lose their child to become activists and cause major change. Isn't is sad that we don't get it till someone actually pays the price? I hope that thru education we can all learn how to prevent these kind of tragedies.
    OT- But I'm just wondering, I see a huge increase in the prevalence of severe food allergies over the years. (Especially peanuts) As far as I know, these life threatening allergies weren't so common as far back as 30-40 years ago. Any theories why allergies are becoming more prevalent? Or am I totally wrong on this?
    ~Shanamama

    Mommy's girl- 10 years old!!
    Daddy's girl- turning 7!!
    monkey boy- 3 years old now!!

    Wacky typos brought to you by autocorrect.

  5. #15
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    Default RE: Food Allergies: Good info for those that don't get it and don't want to

    Done. Thanks Erica!
    ~Shanamama

    Mommy's girl- 10 years old!!
    Daddy's girl- turning 7!!
    monkey boy- 3 years old now!!

    Wacky typos brought to you by autocorrect.

  6. #16
    ilovetivo's Avatar
    ilovetivo is offline Platinum level (1000+ posts)
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    Default RE: Food Allergies: Good info for those that don't get it and don't want to

    You're not wrong. 12 million plus people have food allergies in the US. 2.2 million school-aged kids. One in every 17 kids under the age of 3. Peanut allergies have doubled from 1997-2002. Researchers are trying to find out why. Some theories are that the allergens are in everything now....soy, peanut, dairy - in everything. It's totally not logical where they show up. Peanuts in Jelly Bellies, chilli - Dairy in medicines, shampoo, baby wipes - soy and corn in everything! I think whatever country's main dish, has those allergies. Like fish in asia. Peanuts here are roasted, but not elsewhere as much. Roasting makes them more allergenic. Another thought is the hygene theory - our nation is so clean now, that our systems have nothing else to fight but non-harmful things. I believe people who are raised on farms have less allergies.

    Food allergy facts and basics
    http://www.foodallergy.org/downloads...ergyBasics.pdf

    Important to know that each reaction can be different. If you've been having small reactions all along, the next one can still be life threatening. Also, food allergies can pop up at any time, as a pp stated about her dh. Trace amounts can cause severe reactions. Some are sensitive to products made in the same facility as their allergens. All food allergic patients have to look constantly for hidden food allergies in everything. Touching a countertop or toy, that someone touched w/ the allergen on their hands, and then touching their eyes, nose or mouth can cause a reaction. Contact reactions happen too (just touching your skin).

    The Food Allergy and Anaphylaxis Network www.foodallergy.org is the premier site in the US to go to for help and donations, product resources, research, food alerts etc. All food allergic families would benefit greatly from that site and www.kidswithfoodallergies.org

    Food Allergy FAQ http://www.foodallergy.org/questions.html
    what is it, symptoms (hives, vomiting, breathing difficulties, constant runny nose, swelling, death) best treatment (total avoidance), cure (no), treatment (epi injector), difference btwn intollerance and allergy etc.

    How to contact your legislators
    http://www.foodallergy.org/Advocacy/contactlegis.html

    common allergens - dairy, egg, fish, shellfish, soy, wheat, peanut, tree nut, (sesame and sulphites are #9 & 10)
    http://www.foodallergy.org/allergens/index.html

    What's Anaphylaxis - "sudden, severe, potentially fatal, systemic allergic reaction that can involve various areas of the body (such as the skin, respiratory tract, gastrointestinal tract, and cardiovascular system)." It can occur w/in minutes to several hours. Sometimes there's a 2nd reaction hours later that can be even worse than the first. http://www.foodallergy.org/anaphylaxis/index.html

    DD 7 - outgrew dairy allergy 6/13/11 - She had FPIES http://bit.ly/WhatIsFPIES

  7. #17
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    ilovetivo is offline Platinum level (1000+ posts)
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    Default RE: Title Edit - Food Allergies: Good Info All, Even Those That Don't Get It

    By the way, I'm not an expert or a health care professional. I'm not giving medical advice. I'm just sharing knowledge that I've gained from having a child with potentially life threatening food allergies - dairy (confirmed), peanut & tree nut (likely) - avoiding seeds, fish and shellfish - outgrew egg at age 2.

    Some advice from info I've gained -
    - Delay introducing likely food allergens as long as possible. For example, introduce peanut, tree nuts & shellfish after age 3. Longer if there's a history of allergies (any allergies food or not) in the family.
    - Trust your instincts
    - See a pediatric allergist if you have any concerns. Most pediatricians are not well versed on food allergies. Especially since the field is changing so rapidly!
    - There are allergic conditions that test negative to all types of test. They are non-IGE mediated. If you suspect your child isn't well, despite all the negative finding, contact an allergist/immunologist. One condition is called EE or EOS - eosinophilic esophagitis www.apfed.org. ETA: There's also food protein induced enterocolitis (FPIES, milk MPIES, soy SPIES). Typical symptoms are delayed (median: 2 hours) onset of vomiting, diarrhea, and lethargy/dehydration. (see my post from 1/22


    FYI- Any type of allergy in the family (seasonal, environmental, food) increases their kid's risk of getting food allergies.


    Others with good info - feel free to post info you have as well.

    DD 7 - outgrew dairy allergy 6/13/11 - She had FPIES http://bit.ly/WhatIsFPIES

  8. #18
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    Default Celebrities with food allergies

    Famous people with food allergies - don't quote me on these.

    I got some info from this site: http://answers.google.com/answers/threadview?id=745057

    Katie Couric’s Nephew - peanuts
    http://archives.foodsafetynetwork.ca...7-27-01-01.txt

    Ray Romano "Everybody Loves Raymond" star Ray Romano, allergic to peanuts,
    Mirror Magazine, Sunday Times: 29th July 2001
    http://lakdiva.org/suntimes/010729/mirrorm.html

    Jill Soloway, Executive producer on HBO's Six Feet Under - son is allergic to peanuts
    Source: Literary Mama
    http://www.literarymama.com/profiles...es/000940.html


    From the Peanut Allergy Forum
    ==============================
    The Peanut Allergy Forum mentions that
    - Anne Mroczkowski on City Line night news has a peanut allergy
    - Heather Locklear's little girl - Ava has a peanut allergy.
    http://uumor.pair.com/nutalle2/peanu...ML/003957.html

    Another thread at the Peanut Allergy Forum mentions that
    - Barbara Bush once said on a talk show that she was allergic to peanuts
    - Swoosie Kurtz - “I heard somewhere that Swoosie Kurtz is allergic to
    peanuts.
    - Kevin Newman, ABC news host
    http://uumor.pair.com/nutalle2/peanu...ML/000664.html

    ---------------------------------

    Sara Jessica Parker & Matthew Broderick's 4 y/o son (10/02) James Wilkie is allergic to peanuts. Life magazine

    Billy Bob Thorton said in an interview that he was allergic to wheat, milk, and fish.

    Clay Aiken, American Idol (second season) contestant and second place winner/now a recording artist - “Men's Health" - allergic to coffee, chocolate, shellfish, tree nuts, mushrooms, and mints. http://www.achooallergy.com/blog/clayaiken/

    John Kerry's wife, Theresa Heinz Kerry, said in an interview she's allergic to shellfish

    Robert Kennedy Jr son is allergic to peanuts.

    Celine Dion during an interview talked about her son having really bad eczema and "other" issues.

    Tom Poti a spokesperson for FAAN -hockey player (Oilers defenseman) - Severe multiple food allergies (including nuts, fish, MSG)

    Ming Tsai and Alton Brown both have kids w/ food allergies

    Kelly Preston / John Travolta's son Jett had allergy type issues.

    Elisabeth Hasselbeck (or Filarski from Survivor, the View, and Look for less) is allergic to wheat

    Debbie and Lisa Ganz, are twins who operate a very popular twin website and modeling agency out of NY. One of them is allergic to fish and something else.

    Kevin Sorbo supposedly was in an ad for food allergy awareness. Don't know if he or his son is allergic.

    Martha Stewart said once during her show that after being in Maine and eating lobster every day that she became allergic to it, but said she still eats a little bit. She doesn't get it

    Trace Adkins, country music star. He has a web site about his child's food allergies and sells stuffed animals for the cause

    Halle Berry - allergic to shrimp
    Serena Williams - allergic to peanuts
    Lauren Collins - allergic to peanuts
    Alex Kapranos (Franz Ferdinand) - allergic to peanuts
    Alan Chang (pianist & music director for Michael Buble) - allergic to tree nuts.

    Others from
    http://www.angelfire.com/mi/FAST/celebrity.html
    Lisa Vultaggio, Hannah Scott on General Hospital Dairy and wheat
    Lionel Ritchie, singer Dairy intolerance
    Myriam Bedard, Biathlete Unspecified food allergy
    Sabine Voelker, speed skater Beef, pork, chicken
    Caroline, actress on PBS' Zoom, which is an educational show for kids. - Caroline used to be allergic to tomatoes (but isn't now).
    Dale Hurd, Newscaster on 700 Club - Immediate family member allergic to wheat (others?)
    Zoe, actress on PBS' Zoom, which is an educational show for kids. - Latex
    Todd Reirden, hockey player (#28 for St. Louis Blues) - Gluten allergy
    Tava Smiley, Chloe Morgan on General Hospital - Dairy
    Joshua Jackson, Actor (Dawson’s Creek, Pacey) - Peanuts
    Drew Barrymore, actress. - Coffee

    Food allergy rise attributed to Celebrities http://www.medindia.com/news/view_news_main.asp?x=7031
    actress Rachel Weisz has a wheat intolerance
    Geri Halliwell - wheat intolerance
    dairy intolerance - Orlando Bloom and Victoria Beckham
    gluten intolerance - Carol Vorderman
    lactose intolerance - Rachel Hunter.

    Robert Zoellick (Deputy Secretary of State and former US Trade Representative ambassador) is severely allergic to peanuts. My husband used to work under him and always said to me that if he can become UTSR and travel everywhere in the world, there is no reason why our daughter's life should be restricted because of her allergies.

    Article from Sports Illustrated. Saints quarterback, Drew Brees, Brees's long list of food allergies includes dairy, wheat, gluten, eggs and nuts

    ETA: shortened text
    DD 7 - outgrew dairy allergy 6/13/11 - She had FPIES http://bit.ly/WhatIsFPIES

  9. #19
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    Default RE: Food Allergies: Good info for those that don't get it and don't want to

    Thanks for sharing that letter. :)

  10. #20
    val01 is offline Silver level (200+ posts)
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    Default RE: Title Edit - Food Allergies: Good Info For All, Even Ones That Don't Get It

    Thank you for posting this to bring awareness to this issue. My DH has a milk protein allergy that is near fatal. He had one lick from an ice cream cone that almost took his life when he was 2.

    Valerie

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