I just heard about this case through Facebook. Apparently a family took their teenage daughter, who had been diagnosed with mitochondrial disease and treated at Tufts Medical Center, to Boston Children's Hospital on the advice of her Tufts doctor. A gastroenterologist who had previously treated the girl had transferred to that hospital, so her parents took her there specifically to see that doctor. The staff at Children's determined that she was a psychiatric patient, that she did not have mitochondrial disease, and they wrested custody away from the family accusing them of medical abuse for having treated her for mitochondrial disease. They refused to consult with the Tufts doctor. The girl never got to see the gastroenterologist. Her family were not allowed to transfer her back to Tufts, get second opinions, or be involved in her care. Their visitation was also limited to once a week. The girl did not get substantially better over her year on a locked psychiatric unit. The courts will determine where she will go next on Friday.
There's a lot to this case. You can read a good article here:
http://www.bostonglobe.com/metro/201...xZI/story.html
I find this terrifying! There need to be some laws protecting people from these medical establishments and the willingness of the state to uphold the determination of one hospital over and above the wishes of the family and the educated opinions of other medical professionals. Nobody should be able to take your children away because you are a pushy mom advocating fiercely for your child's care, which is what seems like has happened in this and several other cases mentioned in the article (one of which was a case of PANDAS.)